This blog post by Love Explosions covers an important concept of parenting that is not unique to parenting autistic children and it does so brilliantly. Given that I have not covered the topic of self-care anywhere in my blog, I thought I should share it.
“Caregiver burnout” caries the implication that the person being cared for is somehow culpable. It also leaves others with the impression that this state of emotional distress is inevitable when you have an Autistic family member
I dislike the term “caregiver burnout.” To me, it carries a very negative and connotation about the person being cared for. It also seems to imply some sort of culpability on the person under care which makes me super uncomfortable in a way that I cannot articulate.
It makes me so sad to see people using this term to describe themselves and all that it implies about their Autistic children. And families. It makes me sad that these stories of hardship dominate the conversations about Autism because it gives the impression that there is no alternative to this way of life–to this emotional state of being when you’ve got an Autistic family member.
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