More diverse books for kids

If you are passionate about diversity and you have children, you might be interested in these children’s books. I have written about other diverse books that I bought for my children here.


A photo of the front cover of the book ‘Ugly’ by Robert Hoge. Background is light-greenish yellow. A rough sketch (as if done in black texta on white background) of a young man’s face. He has thick ears, short straight black scruffy-looking hair, big bushy eyebrows and small black eyes set wide apart. There is an uneven line drawn down the middle of his face (suggesting an uneven bone structure) passing through a wide asymmetrical-shaped nose. The word ‘Ugly’ is at the bottom of the page, slightly to the left, obscuring the chin of the sketched face. The word appears written with crooked block letters and looks as if it is coloured-in poorly with red pen.

It is a true story written for children probably from around ages 8 and up, although I found this book captivating to read myself. The blurb at the accurately refers to the book as “engaging” for readers but it was a bit disappointing to see it also refer to it as inspiring given that ‘inspiration porn’ is considered problematic by many people with disabilities. Regardless, this book gives some great general and specific life lessons about the stigma of disability, the unnecessary and cruel nature of teasing, about how dedication and practise can lead to success and about believing in the competence of people with disabilities. A must read!


Photo of the front cover of the book ‘I Love Being My Own Autistic Self!’ by London Bryce. Background  colours are bold yellow, black and red. A blue cartoon character is situated near the centre of the red part of the background, from the chest up. The character has no hair, thin long dark blue eyebrows, thin closed dark blue eyes, small almost egg-shaped dark blue nose and an open wide mouth in the shape of a smile with two white bottom front teeth slightly visible. There is a speech bubble leading to the characters mouth (which is white fading to grey at the edges with black print) with the words ‘I Love Being My Own Autistic Self!’ in black. Across the bottom of the front page on a light grey background are the words ‘A thAutoons Book by Landon Bryce’.

This book is written for autistic children to help them make sense of their own identity and the contradictory messages they receive about autism from others. It is unique from other children’s books about autism in that it uses identity-first language, the preferred language of many autistic people.

This book is written from the perspective of a fictional autistic boy called Vector who introduces us to other characters in the story such as his autistic friends, neurotypical friends and family. All the characters appear as simple cartoon characters.

Vector explains the differing thoughts and feelings about autism of himself and each of the characters, including what Vector considers to be the “good” and “bad” parts of his own autism.

I actually scribbled out the words “good” and “bad” because it didn’t sit well with me and instead I wrote ‘strengths’ and ‘vulnerabilities’ above where those words are. Everybody has there own preferred language and I’ve never been a big fan of ‘good’ and ‘bad’.

What is best about this book is that it puts Vector’s thoughts and feelings about others’ perspectives at the forefront of the story and would probably help neurotypical readers to be less ableist and more supportive (if they were open-minded, which if they purchased the book, they probably are).


Photo of the front cover of ‘If the World Were a Village’ Third Edition. By David J. Smith. The front cover has a mottled dark blue background. A fuzzy circle approximately 15cm in diameter representing the world is in the centre of the page. Dark green colour represents the land mass and dark blue the sea. On the upper right hand side of the largest section of land mass there is a forest of lush green trees interspersed with groups of buildings of differing sizes with red roofs, white walls and blue windows. Outside the circle in the upper right-hand side and lower left-hand side is a large (2cm) yellow star with 5 points. The star on the bottom of the page has a triangular strip of yellow leading to it from the right- hand corner of the page. The title of the book ‘If the World Were a Village’ is at the top of the page in large yellow print. At the bottom of the page in slightly smaller yellow print is the text ‘A Book about the World’s People’.

Quoting directly from the book:

“This book is about “world-mindedness,” which is an attitude, an approach to life. It is the sense that our planet is actually a village, and we share this small, precious village with our neighbours. Knowing who our neighbours are, where they live and how they live, will help us live in peace.”

It condenses the world into a small village of 100 people in order to make comparisons between people in the world easier for children to comprehend. Each person in the village represents 71 million people from the world. The comparisons range from nationality and language to money and food security. For instance, only 9 out of the 100 villagers speak English; 21 speak a Chinese dialect.

The illustrations are quite stunning with bold colours and show a diversity of able-bodied adults and children throughout the book (although I might have seen a couple of walking canes- the pictures do not focus heavily on detail) as indicated by skin colour and clothing.

I found the facts very interesting myself and think this book would have to be one of the best ways to help children to understand that their experiences are just one of many ways that people are living in the world. There is not one way to be.


Photo of the front cover of ‘Sex is a Funny Word. A book about bodies, feelings and you’ by Cory Silverberg and Fiona Smyth.The background is purple with a brick pattern representing the wall of a house. In the top half is the title of the book ‘Sex is a Funny Word’ in yellow block print, outlined in black, on a rounded square-shaped sign with red background. The sign is flush with the wall and directly above a rectangular window (with green background and pink curtains drawn to the sides). Four children are reaching up out of the window smiling. On the left-hand side, in the open window, is a child with an orange shirt, blue hair and light purple coloured skin (Omar). Omar’s right arm is raised in the air, his crutch is leaning against him and his left hand is resting on the window sill. To Omar’s left is a child with blue skin and shoulder-length straight black hair (Mimi). Mimi is wearing a red shirt and her left arm is raised in the air. To Mimi’s left is Zai, Zai has dark purple skin and hair. Zai is wearing a striped red and orange shirt with a green cardigan. Zai is resting both hands on the window sill. To Zai’s left is Cooper, Cooper is wearing a yellow shirt with a cat print. Cooper is wearing glasses and has red curly hair and freckles. Both Cooper’s arms are raised in the air. Omar, Mimi, Zai and Cooper are all smiling. In the bottom right-hand corner of the page are the words ‘A BOOK ABOUT BODIES, FEELINGS, AND YOU’ in white print on a red background. In the top right-hand corner of the page are the right side of two windows, one on top of the other with green backgrounds. On the window sill of the lower window is a pot plant containing two pink flowers and the upper window has green curtains.

This book takes four main characters (Omar, Mimi, Zai and Cooper) on a journey of discovery about their bodies, their rights, their preferred gender expression and their gender identity. The characters are diverse in appearance, gender and opinions. The only sexual activity covered in this book is masturbation, mostly referred to as “Touching Yourself.”

‘Sex is a Funny Word’ is LGBTIQ inclusive.

“Most boys are born with a penis and scrotum, and most girls are born with a vulva, vagina, and clitoris. But having a penis isn’t what makes you a boy. Having a vulva isn’t what makes you a girl. The truth is much more interesting than that!”

This book is also inclusive of people with disabilities. One of the four main characters has a visible disability and other characters pictured in the book also have visible disabilities.

What is also good about this book is that it also shows a variety of pictures of different looking “middle parts”. We don’t all look the same and the appearance of our “middle parts” changes with age. This is likely to be reassuring to some children or at least prepares them for change.

This is an excellent book to help children be accepting of differences in bodies, gender expression and gender identity. It also encourages further discussion by posing age -appropriate questions to the reader.


Photo of the front cover of ‘Our World Bardi Jaawi, Life at Ardiyooloon’. One Arm Point Remote Community School. The background colour is bright yellow, on which are painted simple dark yellow flowers.Taking up most of the centre of the front cover is a rough- edged circle of dark blue with a continuation of the painted flowers but in a lighter blue colour. In the centre of the circle, in large capital letters of yellow are the words ‘OUR WORLD’. On a line underneath in smaller more creative print (black print with thick yellow line containing black dots down the straight length of each letter) is the text ‘BARDI JAAWI’. Underneath this in smaller print again but the same style as the line above are the words ‘LIFE AT ARDIYOOLOON’. Finally, underneath this line in plain black capital letters of much smaller print is ‘ONE ARM POINT REMOTE COMMUNITY SCHOOL’. Various sea creatures inclusive of crabs, fish and turtles are simply sketched in a child-like way, in black, at the bottom of the circle under the text. At the top of the circle, above the text, partly extending into the yellow background, is a simply sketched boat with a motor. In the boat are three characters, in black and grey, fishing with fishing rods. Fish are attached to oversized hooks on two of the lines at least. A bird perches on the edge of the boat. In the top right hand corner of the page is a brown circular sticker with the words ‘THE CHILDREN’S BOOK COUNCIL OF AUSTRALIA, SHORT-LISTED BOOK’

This book documents activities undertaken by the children of One Arm Point Remote Community School (Western Australia) as part of the One Arm Point Culture Program. The program was initiated in 2008 to “find ways to pass on their knowledge and ensure that Bardi Jaawi traditional culture and language was kept alive for future generations”.

This book is beautifully designed by Tracey Gibbs. It includes photographs, drawings and recounts by the children of their experiences participating in various cultural activities from fishing and crabbing to looking for bush onions.

Clear, step-by-step directions with accompanying photos are provided throughout the book for some of the activities such as ‘Cooking Pandanus’ and ‘How to make a bough shelter’ in a recipe-like format. However, it is recommended that the reader does not repeat these activities without adult supervision and checking that they do not contravene local law (the Bardi Jaawi have Native Title over their land, sea, reef and islands).

Traditional stories and words (along with guidelines for pronunciation) are also shared in this very thorough book for children on the Bardi Jaawi culture.


Photo of the front page of the book ‘How Many Days to America? A Thanksgiving Story’ by Eve Bunting. The front cover has a pale yellow border about 1cm thick. At the top of the page are the words ‘How Many Days to America?’ in large black print. Underneath are the words ‘A Thanksgiving Story’ in smaller black print. The text is justified to the right. To the left of the text are several pale yellow ropes extending up next to a light brown mast of a small wooden boat. Part of one end of the boat is seen below the text, containing people all standing closely together. They look as if they could topple over the side of the boat easily in poor weather. There are two children nearest the edge of the boat, central to the front page. The girl in a pale pink dress, with a white shirt underneath, looks up at the boy in the collared white shirt. Behind the children stands a man and a woman both with serious expressions. The woman is wearing a bright pink long-sleeve top, blue shall and green skirt. The man is holding onto one of the ropes and is carrying a small sack on his left shoulder with the other arm. He is wearing a white-collared shirt, brown trousers and brown wide-brimmed hat. The sky is pale blue and the water appears choppy in shades of blue, purple and white.

Although it was published in 1988, this book is very relevant today. The story is narrated by a child, who’s family, after being visited by soldiers, needs to flee their home country so quickly that they take no possessions besides the clothes on their backs and jewellery to be traded for safety.

Their journey on a small, dilapidated boat, with other people seeking asylum, is harrowing. As each obstacle confronts them, the child’s parents reassure their children that they will soon reach freedom. Eventually, they reach the shores of America and are warmly welcomed with a feast to celebrate Thanksgiving.


Photo of the front cover of the book ‘My Brother Martin: A sister remembers. Growing up with the Rev. Dr. Martin Luther King JR.’ By Christine King Farris. The background of the book is pale grey. The words ‘My Brother’ are in the top right corner, in lower case, in such a way that each letter appears as a product of rough colouring-in (in black) of a small uneven square and the uncoloured part forms each letter. Underneath ‘My Brother’ is the name ‘Martin’ in red block capital letters outlined in black. To the left of the page is a large head portrait of the Rev. Dr. Martin Luther King JR. The head portrait is a side profile and it is a slightly darker grey colour than the background and appears almost as a shadow. He is looking slightly upwards with his hand in a fist against his chin, which he holds between his thumb and forefinger. He has a neat moustache and the top of his white collar can be seen at the bottom of the page. To the left of the head portrait is a small blue square with rough edges, inside of which can be seen a young girl with her hair in a plait, tied up with a long, thick bright pink bow. The girl is wearing a bright yellow top. She is smiling and looking up into the eyes of the Rev. Dr. Martin Luther King JR. side profile. Below the girl are the words ‘A sister remembers’ in blue and below that in smaller print is ‘Growing up with the Rev. Dr. Martin Luther King JR.’ At the very bottom of the front cover, justified to the right, in red print, is the text ‘NAACP IMAGE AWARD WINNER. A CHILD MAGAZINE BEST BOOK OF THE YEAR’

This book is beautiful. It is beautiful for it’s illustrations, it’s message and it’s celebration of family.

It is narrated by Christine, Dr Martin Luther King JR.’s (M.L.) older sister. Christine recounts innocent childhood pranks, which are beautifully illustrated including the priceless expressions on the faces of their adult targets. However, their innocence is tainted when neighbourhood friends tell them they are not allowed to play with them because they are “negroes”.

The realities of racism to which they had been mostly shielded from were described and explained that day by their mother (Mother Dear). Christine and their siblings were given an excellent education on how to speak up for themselves, with the examples that their father gave when regaling them of tales of his day over the evening meal. On the day of rejection by the neighbourhood children, M.L. was heard by Christine to say to his mother “Mother Dear, one day I’m going to turn this world upside down.”


Photo of the front cover of the book ‘Nelson Mandela’ by Kadir Nelson. A head portrait of Nelson Mandela covers the entire front page, which has a reddish black background. He has short thick white hair perhaps an inch long all over and cleanly shaven face. His brown skin has warm orange red undertones. His face is illuminated by bright light, which reflects mostly down the centre line of his face. Several deep, long wrinkles line his forehead. Fine and feathery wrinkles are under his eyes. His thick red lips as neither turned up nor down. However, deep crevices either side of his mouth and nose may indicate an expression that relies on slightly raised cheeks. His shirt collar is bright white with straight edges with the top of his black jacket difficult to see against the dark background.

I find it hard to appreciate this book with a fresh perspective because I have read ‘Nelson Mandela: The Long Walk to Freedom’. This children’s book manages to simplify his very eventful life into a story suitable for children. However, you don’t really get to know the man like you do in ‘The Long Walk to Freedom’. His character has to be imagined from his deeds, which were exceptional.

Mandela’s childhood and his experiences with the chief and elders are a wonderful introduction to the book. This book briefly covers his studies and work as a lawyer defending people who had been unjustly treated, his life as an organised activist, in subterfuge, during imprisonment and finally when he was released from prison a free man and true leader. It’s a fair introduction to apartheid and one of the key figures in it’s dismantling.





Shoes and humanity

My (early) contribution to the ‘Walk in our shoes’ flash blog

“Every time media reports about the abuse and/or murder of an autistic child, we are told not to judge. We are told to walk in the perpetrator’s shoes. Most of the time, the perpetrator is the autistic child’s parent.

But we have shoes too, and no one ever asks anyone to walk in the victim’s shoes. This flash blog invites people to walk in our shoes for a change.”

I’m tired. In so many ways and for so many reasons, I am tired. Today, I feel tired because I had to repeat myself again.

I carefully crafted my words (to the best of my ability), I researched statistics (to back them up), I tried to refine a logical explanation (as concisely as possible for your convenience) and I even told you how you made me feel (I’ve heard that helps?!).

I’m tired because I feel as though I’m wasting my time, my creativity and my hope for acceptance on you. Hopelessness is exhausting.

Why can’t you understand?

Maybe ignorance and denial is more comfortable. Majority opinion means majority support.

Maybe you disregard us as haters or PC police, without a second thought (I am not a troll and I am concerned about the well-being of others).

Maybe you think I am minimising your experience as a parent of an autistic child (there were times I really wasn’t coping as a parent and I sort help for ME. I did not abuse my autistic children when I wasn’t coping).

Maybe you want someone to blame for the wrongs of the world; a convenient ‘other’.

Maybe you have been responsible for more than your ‘fair share’ of oppression (there is no ‘fair’ share) and shame prevents you from further growth and connection.

Maybe you can’t handle the idea of being wrong. We all make mistakes, we are human.

Maybe you are missing a deep enough understanding of ableism, intersectionality and oppression. Please read about these concepts and keep reading.

Maybe empathy is not your greatest strength (not your fault) and you refuse to believe in anyone else’s experience besides your own (meet more diverse people, go where you haven’t gone before and do what you haven’t done before or read books and blogs. Learn to trust.)

You can never truly walk in my shoes.

Perhaps it’s more helpful if you work on the basics of your humanity: trust, vulnerability, acceptance and connection. But don’t apply your humanity without care because it’s the oppressed that need your support the most and abuse is never justified.


Ableism and homicide

“The media tend to report on hearsay… and not facts. They take pieces of a story or a perception of a story, link them together and then use engaging and emotive language to sell their own interpretation of a situation. The circumstances of what happened that day are unknown. The Police have not released any information…I think we, as a society, need to have respect for the family and the community who are experiencing something we could never imagine…Who knows what, why or when it occurred. I hope this doesn’t offend you. I too stand up for and speak up for people with disabilities and who experience DV (domestic violence) in families of all shapes and sizes.”

I had posted an article written by Stella Young, on my Facebook page, in the wake of an alleged murder/ suicide, which occurred several towns removed from where I was raised. The article was a damning criticism of the media’s response to it. Stella Young wanted to bring to our attention the ‘victim blaming’ rhetoric that was used by the media with respect to the murder victim’s disability and so did I.

The message above was sent to me by someone I love so I decided to remove the post for her sake, with massive feelings of guilt that I’d also committed a social fopar and caused people more pain. FYI the family were not Facebook friends of mine nor to my knowledge were any of their friends. One person commented that she knew friends of their friends and that they were grieving (implying that I should not have posted it).

This year in Australia a unique campaign against domestic violence was started and it has received significant media attention. It is referred to as the ‘Counting Dead Women’ campaign * and it gathers statistics on women as they are murdered. They report it immediately as it happens. The point is, this is happening now. Why do we need to wait a certain amount of time before commenting on it? As Emma Watson, UN Women Goodwill Ambassador, said in her speech during the launch of the ‘HeForShe’ campaign “If not me, who? If not now, when?”

Let me tell you something, I have never been a victim of domestic violence. However, if my husband ever kills me, I want everyone who ever cared about me to condemn his actions not sympathise or empathise with him.  If anyone refers to me being autistic as an additional stress on the relationship, I would like someone, anyone, preferably everyone to be ‘calling it out’ right away. Because ultimately, I will be the one who’s feelings should be considered foremost above the murderer and above the family and friends.

Over six months has passed since I posted Stella Young’s article and nothing more is reported nor will it ever be, as it is no longer news. However, Stella’s words still stick with me: “Some media have reported that police believe it was more than likely the ongoing strain caused Geoff Hunt to snap”.

Some of you will buy into the story that the burden of caring for a person with a disability could very well be a mitigating factor in any murder/ suicide. But there are by far more carers that do not murder or abuse the person they care for. I put to you that it is sexism / ableism/ racism in fact a long list of isms and phobias that are by far the mitigating factors. When the victims of domestic violence in Australia are predominantly women, with an even higher proportion of disabled women and indigenous women being abused, a pattern emerges. The statistics are similar in America for disabled women and women of colour.

It would be nice if everyone understood intersectionality. Intersectionality, as a concept, helps us to understand how the consequences of discrimination get greater for you when there are a greater number of things you can be discriminated against. Ultimately, the odds are not good for your mistreatment if you fit within more than one category of oppression within society (National Coalition of Anti-Violence Programs: Hate Violence Report).

A parliamentary research paper on the Domestic, Family and Sexual Violence in Australia determined that

“The full extent of violence against people with disabilities is unknown, but it is estimated that women and girls with disabilities may be twice as likely to experience violence as those without disabilities. Women with disabilities are particularly vulnerable to physical, sexual and psychological violence due to their situation of social and cultural disadvantage, and increased dependence. There are particular forms of abuse that are unique to people with disabilities, such as removal of an accessibility device, withholding medication and threatening institutionalisation. Adults with intellectual or psychiatric disabilities are particularly at risk of sexual assault and exploitation. When the abuser is the main carer, individuals suffer neglect, isolation and intense vulnerability to abuse; it may be impossible for them to get help.”

Note that no-where in this report do they say that it is the “burden” of caring that leads to an increase in violence against them but that women with disabilities are more vulnerable to violence due to their situation of social and cultural disadvantage and that there are additional forms of abuse available for them to be exploited by.

Thanks to the scare campaign about autism, led by Autism Speaks, autistic children are particularly at risk. We are essentially being told by Autism Speaks and compliant media that to be a carer is a burden that can lead us to murder. It’s almost beyond belief that Kelly Stapleton was given a platform to humiliate and blame her autistic daughter who she attempted to murder, on the American talk show ‘Dr Phil’.

Making excuses for murder no matter how well-meaning, effectively accepts it as inevitable thereby unintentionally condoning it. As Jess from ‘Diary of a Mom’ so eloquently explains when a life is devalued by violence it is time to judge. I contend that if we don’t judge privileged violent offenders and worse still if we judge the victim, we are complicit in supporting systems of oppression that exist within society in it’s very worst expression.

*and in an ironic twist, disabled women have been excluded from this campaign (refer here for details). This just helps demonstrate the depth of the problem.

The last man standing

Munch, crunch, slurp, burp! That is what I have learned in the past month or so. I’ve been volunteering, for a couple of hours a week, at my sons’ primary school. In particular, I’ve been given the task of helping a student with her writing but I strongly doubt that I’m actually helping.

It turns out that you learn, at the age of 7, how to engage your readers by starting with action words and clues, to some dramatic event. My student’s narrative was titled ‘Mr Mac ate me’. I find this ironic because a year or two ago, I attempted to write an Autobiography (just because anyone can, right?!). I went as far as to source an experienced author to look at a draft of the first few chapters and she was honest with me. She tried to be constructive in the short time she could spare a complete amateur in her busy schedule by telling me the exact same thing those 7 year olds are being taught right now.

I was also told that the story of being Autistic is no longer unique. We are too normal to publish it seems. Oh the irony! The third and final nail in the coffin of my Autobiography (besides not being able to write and being boring) was that I didn’t want to jeopardise any relationships that I have by being truthful about them and without the truth (or more accurately the truth the way I see it) the most interesting parts of my life can’t be told.

And now, I have a conundrum. My most recent blogposts have taken on a different angle because I feel I can no longer blog about the most interesting people in my life, my Autistic sons. Given that my sons’ truths are different to my truth, is it right for me to interpret their experiences and share them with everyone (even for the sake of sharing what I have learned)? Is it fair to them? Is it empathetic to them?

A cousin of mine recently said to me “I miss all those Facebook posts about the funny things your boys say and do. I used to show my friends and they thought they were hilarious”. I wouldn’t have been comfortable with my mum sharing stories with some of her friends, about the funny things I did or worse the personal awkward things and the upsetting things (closer friends I would have been ok with if discussed respectfully).

Maybe there is an age limit where the private stories stop, like when you stop taking nudie pictures of them playing in the bath or something. Maybe, I shouldn’t have started at all. Anyhow, from now on it stops and you are left with just me.


(P.S. I’ve reinvented myself on Twitter @rachelmcnamar15 as a retweeter of the writings of others on all sorts of social justice issues. Don’t follow me unless you are seriously interested in social justice and keep in mind that many posts are Australia- specific)

“caregiver burnout”

This blog post by Love Explosions covers an important concept of parenting that is not unique to parenting autistic children and it does so brilliantly. Given that I have not covered the topic of self-care anywhere in my blog, I thought I should share it.

love explosions

"Caregiver burnout" caries the implication that the person being cared for is somehow culpable. It also leaves others with the impression that this state of emotional distress is inevitable when you have an Autistic family member “Caregiver burnout” caries the implication that the person being cared for is somehow culpable. It also leaves others with the impression that this state of emotional distress is inevitable when you have an Autistic family member

I dislike the term “caregiver burnout.”  To me, it carries a very negative and connotation about the person being cared for.  It also seems to imply some sort of culpability on the person under care which makes me super uncomfortable in a way that I cannot articulate.

It makes me so sad to see people using this term to describe themselves and all that it implies about their Autistic children.  And families.  It makes me sad that these stories of hardship dominate the conversations about Autism because it gives the impression that there is no alternative to this way of life–to this emotional state of being when you’ve got an Autistic family member.


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to the autistic people in the crowd

It was a call for autistic people!

It was a call for autistic people!

In my last post ‘Autistic Voices’, I almost congratulated our State organisation’s (AMAZE) attempt at promoting autistic voices in their ‘SPECTROSPECTIVE’ movie project. I barely discussed that several of the videos submitted and shared were from a carers point of view and sacrificed the dignity and privacy of their autistic children (such as Addie’s video here It was disappointing that those few videos compromised the message but I was so used to it that I accepted it as inevitable. However, just today I read this blog post by Jess from ‘A Diary of a Mom’ and I realised that AMAZE could have done better. AMAZE called for autistic voices (stories of autism from an autistic persons perspective) so they should have been the only videos shared. Neurotypical people should not be hijacking our voices. Neurotypical people already get most of the attention on the discourse of autism. Neurotypical people could learn from Jess. I could learn from Jess. Keep spreading your words Jess and amplifying ours, we need allies like you 🙂

a diary of a mom

I had made a decision. Before I said anything else, I would say this. Even if it were technically only addressed to 3 out of the 240 people in that room, it mattered. And it mattered that the other 237 hear it.

This is what I said.

I did my best to transcribe the words (below) for those who find auditory processing challenging. Any errors are wholly unintentional.

Thank you so much. Thank you for having me here to all of you and Lisa and Maeghan for all of the incredible that work you’ve done here. I hope you guys can take a minute now that you can breathe and appreciate what you’ve done. This is some pretty amazing stuff. Above all, thank you for ensuring that I am sharing the stage with Michele [Gauvin} who will speak for a few moments later. That’s Saturday, April 4, 2015

” target=”_blank”>really important stuff.

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Autistic voices

Our state autism organisation is called AMAZE. According to their website “Amaze is a member-based not-for-profit organisation and is the peak organisation for Autism Spectrum Disorder (ASD) in the state of Victoria. Amaze represents around 55,000 Victorians who have ASD and work for the benefit of all individuals and their families and to promote better understanding of ASD in the general community.”

To promote a better understanding of autism in the general community is a massive task when there is so much misinformation about it. The AMAZE Facebook Page posts are often followed with passionate comments about the sorts of ‘awareness’ articles they should and shouldn’t post from neurotypical parents of autistic children versus autistic people. A lot of the comments reflect ignorance and fear. The debates are predictable and painful.

Some neurotypical people, such as parents of autistic children, believe that autism is the worst thing that has ever happened to them or that it creates undue stress on their children so they wish their child didn’t have it and they would embrace a cure. Meanwhile, autistic people who embrace their autistic identity, both their strengths and vulnerabilities, feel that their disability arises from a lack of acceptance and inclusion. Not only do autistic people feel that they are undervalued and therefore discriminated against but that they are a likely target for eugenics through the search for a “cure”.

AMAZE will never please everyone but it should be clear which path favours social justice. Unfortunately, social justice has never been an easy path to take. If AMAZE chose to please the majority (a numbers game) they will be catering to neurotypical narratives of autism, which can often be ableist and unintentionally harmful to autistic people through stigma. If they chose to please the minority they are doing right by disability advocacy guidelines “Nothing about us without us” but they will lose popularity and likely donations to further “promote a better understanding of autism” (ironic).

We can support autistic people AND their families while being respectful to autistic people but the task of helping the neurotypical majority to see that seems enormous. It’s almost as though you need to give people a degree in autistic experiences to understand why this is necessary.

Perhaps AMAZE has decided to tackle the difficult path with their recent attempt at doing something different for the World Autism Awareness Day (autistic advocates would prefer the day to be called ‘Autism Acceptance Day’). Instead of the usual march, sporting blue shirts with the latest prevalence numbers printed on them (we are not a number), AMAZE chose to call for autistic people to video record their stories and send them in. The stories were edited and condensed into a 17 minute movie shown at cinemas in Victoria, on the 2nd of April and available to be watched online or by purchased CD.

The initial call was for autistic people to contribute but a few family members chose to speak on behalf of their child/children from their neurotypical perspective and how it affected them as carers, which was particularly unfortunate in the cases where the children were portrayed as a burden. However, the broader message of acceptance was clear enough for those willing to listen.

I chose to watch the movie online, in the comfort of home, with my autistic sons so that I could expand on different concepts that were raised. Much to my surprise and my boys delight, part of my video recording featured in it (at 14:03 min)*. You can view the edited movie and the individual videos at I’m curious to know if you found that it helped you to understand autism from the lived experience and made you question the common narratives of burden, numbers and cure.

*Although my boys were keen to contribute a video recording of their own, my husband was concerned about their privacy, which I respected, so they did not contribute.